by AIP Online Bureau | Jul 3, 2023 | Health, Indian News, Policy
The patients registered with the Centres of Excellence (CoEs) in Delhi — AIIMS and Maulana Azad Medical College (MAMC) — have been diagnosed with Lysosomal Storage Disorders (LSDs) like MPS I, MPS II and Pompe, Fabry All these conditions are classified as...
by AIP Online Bureau | Mar 6, 2023 | Health, Indian News
The consortium shall consider the age of children whose lives may be completely curtailed if treatment is not commenced and the expenses, which may be incurred for providing the medicines, it said The consortium shall deal with the possibility and feasibility of...
by AIP Online Bureau | Mar 2, 2023 | Health, Indian News, Policy
Nearly 50 per cent of new cases occur in children, causing 35 per cent of deaths before the age of one, 10 per cent between the ages of one and five years and 12 per cent between five and 15 years. New Delhi: Patients diagnosed with ultra-rare genetic conditions,...
by AIP Online Bureau | Dec 12, 2022 | Health, Indian News
Justice Prathiba M Singh, while dealing with a batch of petitions for treatment of children suffering from rare diseases, said although the platform became operational pursuant to an order passed by the court in 2021, it needed to be publicised to attract funding from...
by AIP Online Bureau | Feb 3, 2022 | Health, Indian News, Policy
The high court was told that petitioner children are suffering from rare diseases, including Duchenne Muscular Dystrophy (DMD) and Mucopolysaccharidosis II or MPS II (Hunter Syndrome), and seek a direction to the Centre to provide them uninterrupted and free of cost...
