by AIP Online Bureau | Jul 30, 2023 | Data, Health, Policy
Overall the Centre has released around Rs 90 crore in funds to several Centres of Excellence (CoE) for treatment of rare diseases since 2019, the information received under the Right to Information (RTI) Act showed New Delhi: The AIIMS-Delhi received more than Rs 23...
by AIP Online Bureau | Jul 20, 2023 | Facts, Health
The girl was suffering from congenital neutropenia, ”whose worldwide incidence is 2-3 cases per million population”, the hospital claimed A four-year-old girl suffering from a rare congenital condition, whose worldwide incidence is ”2-3 cases per...
by AIP Online Bureau | Jul 3, 2023 | Health, Indian News, Policy
The patients registered with the Centres of Excellence (CoEs) in Delhi — AIIMS and Maulana Azad Medical College (MAMC) — have been diagnosed with Lysosomal Storage Disorders (LSDs) like MPS I, MPS II and Pompe, Fabry All these conditions are classified as...
by AIP Online Bureau | Mar 6, 2023 | Health, Indian News
The consortium shall consider the age of children whose lives may be completely curtailed if treatment is not commenced and the expenses, which may be incurred for providing the medicines, it said The consortium shall deal with the possibility and feasibility of...
by AIP Online Bureau | Mar 2, 2023 | Health, Indian News, Policy
Nearly 50 per cent of new cases occur in children, causing 35 per cent of deaths before the age of one, 10 per cent between the ages of one and five years and 12 per cent between five and 15 years. New Delhi: Patients diagnosed with ultra-rare genetic conditions,...
