by AIP Online Bureau | Apr 29, 2025 | Eco/Invest/Demography, Features, Health
Globally, more than 350 million people live with rare diseases, most of them caused by a misstep hidden within their genes. Some conditions can be caught early and treated—but in parts of Africa where population data and resources are scarce, many people go...
by AIP Online Bureau | Mar 29, 2025 | Health, Indian News, Workplace/Employee Benefits
Under the policy, 63 disorders — including lysosomal storage disorders such as the Gaucher’s, Pompe and Fabry diseases — are categorised as rare diseases, he stated.Financial assistance of up to Rs 50 lakh per patient is provided through 13 Centres...
by AIP Online Bureau | Sep 2, 2024 | Data, Eco/Invest/Demography, Health
“The financial strain on families affected by Hunter’s Disease is immense. By roofing the patients under our existing policy, we can foster better treatment coverage and significantly improve their quality of life,” Saurabh Singh, Co-founder and Director...
by AIP Online Bureau | Feb 17, 2024 | Eco/Invest/Demography, Health, Indian News, Non-Life
Pinarayi Vijayan,Chief Minister, Kerala He said that the state government is trying to prepare a comprehensive care plan to prevent rare diseases, detect them early, provide currently available treatment, provide therapies and assistive technology devices, ensure...
by AIP Online Bureau | Nov 25, 2023 | Eco/Invest/Demography, Health, Indian News, Regulation
Four more drugs for three diseases – Tablet Sapropterin for Phenylketonuria, tab Sodium Phenyl Butyrate and tablet Carglumic Acid for Hyperammonemia and Capsule Miglustat for Gaucher’s disease – are under process for approval and are likely to be...
