by AIP Online Bureau | Sep 2, 2024 | Data, Eco/Invest/Demography, Health
“The financial strain on families affected by Hunter’s Disease is immense. By roofing the patients under our existing policy, we can foster better treatment coverage and significantly improve their quality of life,” Saurabh Singh, Co-founder and Director...
by AIP Online Bureau | Feb 17, 2024 | Eco/Invest/Demography, Health, Indian News, Non-Life
Pinarayi Vijayan,Chief Minister, Kerala He said that the state government is trying to prepare a comprehensive care plan to prevent rare diseases, detect them early, provide currently available treatment, provide therapies and assistive technology devices, ensure...
by AIP Online Bureau | Nov 25, 2023 | Eco/Invest/Demography, Health, Indian News, Regulation
Four more drugs for three diseases – Tablet Sapropterin for Phenylketonuria, tab Sodium Phenyl Butyrate and tablet Carglumic Acid for Hyperammonemia and Capsule Miglustat for Gaucher’s disease – are under process for approval and are likely to be...
by AIP Online Bureau | Jul 30, 2023 | Data, Health, Policy
Overall the Centre has released around Rs 90 crore in funds to several Centres of Excellence (CoE) for treatment of rare diseases since 2019, the information received under the Right to Information (RTI) Act showed New Delhi: The AIIMS-Delhi received more than Rs 23...
by AIP Online Bureau | Jul 20, 2023 | Facts, Health
The girl was suffering from congenital neutropenia, ”whose worldwide incidence is 2-3 cases per million population”, the hospital claimed A four-year-old girl suffering from a rare congenital condition, whose worldwide incidence is ”2-3 cases per...
