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Publicise crowdfunding platform for rare diseases, says Delhi High Court

by AIP Online Bureau | Dec 12, 2022 | Health, Indian News

Justice Prathiba M Singh, while dealing with a batch of petitions for treatment of children suffering from rare diseases, said although the platform became operational pursuant to an order passed by the court in 2021, it needed to be publicised to attract funding from...

Ask AIIMS to start treatment for rare diseases: Delhi HC tells Centre

by AIP Online Bureau | Feb 3, 2022 | Health, Indian News, Policy

The high court was told that petitioner children are suffering from rare diseases, including Duchenne Muscular Dystrophy (DMD) and Mucopolysaccharidosis II or MPS II (Hunter Syndrome), and seek a direction to the Centre to provide them uninterrupted and free of cost...
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