Category:

Risk Management

Rare Disease Day: Health advocacy groups press for govt policy, say India’s numbers unknown

Rare diseases, including genetic disorders such as Hunter syndrome, Gaucher disease and Fabry’s disease, are expensive to treat, difficult to identify and extract a huge toll, mostly on the young, the experts said ahead of Rare Disease Day on Sunday.

Rare diseases are also not covered by insurance policies. It is imperative the government steps in to help these patients so they can lead a near normal life, Health groups in India said.

They have also urged the government to make newborn screening mandatory to be able to identify genetical problems at an early stage. The monthly treatment cost of such diseases can be anywhere between Rs 10 lakh and Rs 50 lakh, they said.

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Govt plans two-day halt in vaccinations for software upgrade to widen campaign

“The countrywide vaccination exercise is being exponentially expanded,” the ministry said in a statement, adding that a new version of its Co-Win digital platform was being rolled out at the weekend.

Co-Win, wrapped into a government mobile telephone app, is being widely used to fix vaccination appointments, allow health authorities to monitor supplies and download proof of immunisation.

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Boeing to pay $6.6 million to FAA over safety lapses

The new settlement covers FAA allegations that Boeing managers exerted undue pressure on Boeing workers performing certification duties for the FAA at the company’s South Carolina plant. The FAA also alleged Boeing “failed to follow its quality control processes” and “interfered with an airworthiness inspection of a Boeing 787-9.”

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India tightens regulatory grip on Facebook, WhatsApp with new rules

India is the largest market by user numbers for both Facebook and WhatsApp.

The new rules issued by the government, called the Intermediary Guidelines and Digital Media Ethics Code, will be legally enforceable.

They will require big social media companies to set up a grievance redressal mechanism and within three months appoint new executives to coordinate with law enforcement.

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Trading on India’s largest stock exchange halted by telecom breakdown

“The NSE outage is unfortunate, especially for this long. Global exchanges should have adequate backups to ensure that even if there is an outage it’s restored fast,” said Sandip Sabharwal, a Mumbai-based fund manager.

“Asian markets saw a significant crash on Wednesday, and at such times, price discovery real-time becomes even more important.”

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Indian traders face ‘absolute havoc’ as bourse suffers four-hour outage

At 11:40 a.m., the NSE shut down completely for trading, leaving traders wondering what would happen to their open positions.

The incident occurred just ahead of the monthly derivatives expiry on the last Thursday of the month, when traders close or roll over their open positions.

“This was an unmitigated disaster because you need to communicate this proactively. Not one person in the market knew they would shut down the exchange,” Varun Khandelwal, director at Bullero Capital, a New Delhi-based proprietary trading firm.

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