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Will take action if digital crowd funding platform for rare diseases not made operational:HC

The court was hearing a batch of petitions on behalf of children suffering from rare diseases, including Duchenne Muscular Dystrophy (DMD) and Mucopolysaccharidosis II or MPS II (Hunter Syndrome), and seeking direction to the Centre to provide them uninterrupted and free of cost treatment as the therapy is very expensive.

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India accounted for highest number of govt requests for account info in Jul-Dec 2020: Twitter

India also ranked second in terms of volume of legal demands for content removal, after Japan, Twitter — which has an estimated 1.75 crore users in India — recently appointed a Resident Grievance Officer, days after it designated a Chief Compliance Officer, and also released its first India Transparency Report on Sunday to comply with the new IT rules.

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China tightens control over cybersecurity in data crackdown

Beijing is increasingly sensitive about control over information about its people and economy. Companies are barred from storing data about Chinese customers outside China. Companies including ride-hailing service Didi Global Inc, which recently made its US stock market debut, have been publicly warned to tighten data security.

Under the new rules, anyone in China who finds a vulnerability must tell the government, which will decide what repairs to make. No information can be given to “overseas organisations or individuals” other than the product’s manufacturer.

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Medicare evaluating coverage for $56,000 Alzheimer’s drug

“We want to consider Medicare coverage of new treatments very carefully in light of the evidence available. Our process will include opportunities to hear from many stakeholders, including patient advocacy groups, medical experts, states, issuers, industry professionals, and family members and caregivers of those living with this disease” CMS( Centers for Medicare and Medicaid Services) Administrator Chiquita Brooks-LaSure said in a statement

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Zika Virus Disease: Karnataka intensifies vector control measures

“In view of reporting of Zika Virus Disease (ZVD) in the neighboring State of Kerala, it is crucial to intensify the vector control measures in Karnataka also. The current monsoon season supports the widespread proliferation of Aedes mosquito, which is a vector for Zika Virus Disease,” a circular by the Commissionerate of Health & Family Welfare Services said.

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Canada orders rail safety measures to reduce risk of wildfires

The order will require both Canadian National Railway Co. and Canadian Pacific Railway Ltd. to take precautions against wildfires, including reducing train speeds, according to a Transport Ministry statement.On Friday, Nationally, trains will have to run at reduced speeds when there is extreme fire risk and when the outdoor temperature is high. CN and CP will also be required to come up with a fire risk mitigation plan and consult with indigenous communities about fire hazards.

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